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i got an incurable skin disease, worsened by medical neglect and malpractice. fast forward 6 months later and iâve lost everything. not like i had much in the first place. but the things you might see as simple, having normal fucking skin that doesnât peel and bleed. i lost most of my eyebrows and the hair on my head. i look like a fucking burn victim all the time.
i used to be seen as unapproachable\undesirable before... but now.. oh god.. now. iâm seen as repulsive. like even children hide when they see me. thatâs how bad it is.
at this point i guess iâve kind of given up the hope of healing or a happy ending. this is my life now. not only physical pain but a manifestation of it that EVERYONE CAN SEE. and they treat me horrifically because of it now.
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Is it psoriasis or eczema?
neither. TSW and god knows what else. i have been to so many doctors and nobody knows whatâs going on with me. whatâs more painful than the disease itself is not knowing what it is or how to fix it
It was like this for me when I got acne in my teens. I too looked like a burn victim at times and people didn't hold back from pointing it out. I know how you feel.
I'm really sorry you have to go through this. Men get illnesses like this and no one treats them like monsters. When my acne was worse, I found comfort in nature. Maybe consider moving somewhere in the countryside or somewhere remote, and working online. I'm not saying you are a leper or that you should live like one. I know how you feel, and I garantee these things will bring you some peace and normality until either your skin improves or you stop feeling bothered by people's opinions... which isn't easy, and it's even worse when you are made to watch everyone else around you live perfectly normal lives.
exactly!! as a woman anything physical and people start treating you differently. itâs so fucked up and nobody says anything about it.
i want to move up north where thereâs less people, less deadly heat so i have an excuse to be covered in layers and layers and people donât make fun of me for it. but iâm stuck here in the south because of college. i want to get out though. because i donât see this getting better anytime soon and i guess it just is what it is. thanks nonetheless
I am so sorry I know exactly how you feel. I'm going through something similar, lost most of the hair on my head and have severe acne. I have to now take a cocktail of medication that doesn't do much and I hate hate hate the way I look. I constantly fixate on the damaged skin and hair. I hate my life.
I am always here to talk if you need to.
iâd love to talk. best of luck to you, skin issues suck so much. and medications donât do anything, i know that too. sometimes i find myself wishing for a disease that no one was able to see, so i would get sympathy instead of repulsion
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